Hybrid Workshop: Sustaining Community Engagement in Genomics Research
The National Academies Genomic Roundtable is hosting a public hybrid meeting: Sustaining Community Engagement in Genomics Research on July 17, 2024 from 8:30a – 3p ET.
Register here if interested. Workshop description available online and below.
This hybrid workshop will examine how researchers could more meaningfully engage and sustain interactions with historically underrepresented communities in research to foster their participation in genomics and precision health studies. The overarching goal of the workshop is to help improve the quality of genomics research by understanding where obstacles to sustained community involvement remain.
The workshop may include invited presentations and discussions to:
- Understand limitations, both logistical (e.g., funding) and structural (e.g., past harms, lack of trustworthiness), to sustained community outreach and discuss possible solutions to those obstacles.
- Examine opportunities for researcher trainings related to sustained community outreach and engagement in genomics research.
- Discuss community engagement methods for genomics research with foundations, societies, patient groups, and other organizations about lessons learned from how they fund, engage, form, and measure success of partnerships with communities, other foundations/organizations, and researchers.
- Explore how community engagement methods for genomics research might differ when working with various underrepresented communities (e.g. LGBTQIA+, people with disabilities, racially minoritized groups, indigenous populations, women, geographically isolated groups).